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South Carolina’s leading experts in cystic fibrosis care.

Cystic fibrosis is a serious condition that can make it difficult to breathe and cause other health challenges. But there’s hope. Specialized care from MUSC Health is helping adults and children live longer, with a good quality of life. 

At MUSC Health, you have access to all the medical specialties you need in one program, including nationally renowned lung and digestive health experts. We go a step further by coordinating your tests and treatments so that you can focus on your immediate health needs. 

What is cystic fibrosis?

Cystic fibrosis (CF) is a disease affecting the way the body produces mucus. This watery substance protects the lining of certain organs, including the lungs. With CF, mucus becomes thick and sticky. It gets in the way of normal functions of the lung and other organs. People with CF have a higher chance of lung infection.

Mucus may build up and block the tubes that bring air in and out of your lungs (airways). CF can also affect organs in the digestive system, including the pancreas and liver. When this happens, your body produces fewer digestive enzymes. As a result, it becomes difficult for your body to absorb nutrients from food. As an inherited disease, CF is passed on in families.

Our nationally recognized Cystic Fibrosis Center.

MUSC Health is home to the only Cystic Fibrosis Foundation-accredited program in the Lowcountry. This prestigious designation means we hold ourselves to the highest standards in every aspect of cystic fibrosis care, including diagnosis, treatment, and support. We are also advancing the field through research to make treatments safer and more effective. Our expertise draws adults and children from all over South Carolina and surrounding communities.

Highlights of our program include:

  • Team Approach: Respiratory therapists, doctors, pharmacists, and dietitians specializing in CF come together to meet your every need. We are available in person and by phone to provide ongoing care, support, and recommendations that maximize your well-being. Meet our adult CF program and pediatric program teams.
  • Research: We are making care safer and more effective through research. Our experts are leading the largest-ever CF trial to establish standards for controlling a lung problem called pulmonary exacerbation. These efforts will help to improve the way doctors treat CF patients all over the country. Find out more about clinical trials and research at MUSC Health.
  • Pediatric Expertise: Our deep expertise in meeting the unique needs of children with CF includes personalized nutrition counseling and physical therapy. We also provide extra support for parents, such as helping you manage your child’s daily medications. We also help adolescents learn how to manage treatments and live as independently as possible as part of our transition program. Learn more about the cystic fibrosis center at MUSC Children's Health.
  • Coordinated Care: If you need to go to the hospital for a lung-related problem, such as difficulty breathing, a select group of hospital-based doctors coordinates all of your care. These doctors have years of experience helping people with CF improve. The doctors are also in regular communication with our CF team, which helps us tailor treatments to meet your unique needs.

Care that puts you first.

The care that’s right for you depends on the symptoms you are experiencing and how serious they are. We explain all of your options and together make a plan to help you feel better.

Treatments for CF provide much-needed relief from common problems, including:

  • Breathing problems due to mucus buildup
  • Difficulty absorbing nutrients from food
  • Long-lasting (chronic) cough
  • Lung infections

Your care may include:

  • Antibiotics for infections.
  • Breathing techniques that help clear the airways, improve lung function, and lower your risk for infection.
  • Devices including an inflatable vest to loosen mucus and improve airflow in the lungs.
  • Medications to relieve symptoms and treat complications such as lung infections and digestive problems.
  • Nutrition counseling including personalized diet and vitamin recommendations to optimize nutrition and growth in children.
  • Physical therapy to help loosen and clear excess mucus in the lungs and help you gain strength.

Refer a patient

We welcome the opportunity to partner in caring for your patient.

For more information about referring a patient to us, please call 843-792-0729 during regular business hours: Monday through Friday, 8:30 a.m. to 5:00 p.m..

To initiate a referral, please complete a referral form and fax it to 843-792-2995.

Find a cystic fibrosis specialist.

Search by location, keyword, or specialty to find the MUSC Health provider that best fits your needs.

Marri Horvat

Marri Horvat, MD, MS

4.7/5.0 - 133 rating
Specialties
  • Sleep Medicine
  • Critical Care Medicine
Locations (1)
  • Charleston, SC
Accepting New Patients
Alexandria Ingram

Alexandria Ingram, MSN, APRN, FNP-C

4.8/5.0 - 103 rating
Specialties
  • Critical Care Medicine
  • Pulmonology
Locations (2)
  • Chester, SC
  • Lancaster, SC
N/A

N/A, MBBS

Specialties
  • Critical Care Medicine
  • Internal Medicine
Locations (1)
  • Lancaster, SC

Our team is innovating care for you

Brandie is a certified adult nurse practitioner who started her career at MUSC in 1999. Brandie received her master’s in nursing from MUSC. Her experience includes pulmonary critical care, solid organ transplant surgery, cystic fibrosis, and non-tuberculosis mycobacteria disease. Brandie’s role as an independent provider includes caring for patients in the outpatient and inpatient setting. She is also a sub-investigator on many clinical trials here at MUSC.

Sue has a Bachelor of Science in Nursing degree from Viterbo University in La Crosse, WI and a Master of Science in Nursing degree from the Medical University of South Carolina in Charleston, SC. Sue has been at MUSC since 1995 and joined the Adult CF Center in 1998 as clinic coordinator. For the past many years, she has been involved in many changes to the program and to the treatments for people with CF. Sue has been recognized for her expertise in CF and as a program coordinator. She serves as a mentor, formally and informally, for new program coordinators and frequently presents to local and national groups about CF, program coordination, and aspects of care in CF. 

Jeralyn started her nursing career at MUSC in 1997. Prior to joining the CF team in December 2021, she was the nurse case manager in the Pediatric Intensive Care Unit for nearly 10 years. From the time of initial referral to transition into the adult program, Jeralyn collaborates with the entire CF team to optimize each patient’s care. She is the primary point of contact for pediatric families, fielding questions, concerns, and sick calls. She coordinates clinic visits, labs, studies, medications, school/childcare needs, referrals, and more. Jeralyn enjoys working with families and their communities on CF education, awareness, and advancements. 

Brian is a nationally certified infusion nurse with experience in antimicrobial, nutrition, inotropic, and chemo therapies. He has been a nurse consultant for MUSC since 2016 and became a nurse after being a middle school teacher for many years.

Dr. Bullington is a licensed pharmacist who has practiced in the area of CF for almost 20 years. She works with both adult and pediatric patients and their families to improve daily care by finding a medication regimen that is sustainable. She is also involved with the Cystic Fibrosis Foundation in the Sustaining Daily Care Initiative and the Daily Care Check-In.

Nutrition is an important part of CF care, as maintaining a healthy weight promotes better lung function. Sara follows patients from birth through older adulthood, providing knowledge on how to manage nutritional needs. She meets with all patients at least once a year in clinic, but often checks in more frequently to review growth, offer meal and snack tips, or discuss enzymes, vitamins, and nutritional supplements. She helps manage CF-related complications such as diabetes, bone disease, and gastrointestinal disease, and coordinates tube feeding when necessary.

Wayne studied Respiratory Care at Trident Tech and the University of Cincinnati. He began his career at MUSC in 2003, first working in critical and acute care, then transitioning in 2015 to work full-time with pediatric and adult CF centers. Wayne educates and coordinates customized respiratory care approaches for patients and families.

Suzanne assesses and counsels patients and families on the emotional, social, and financial aspects of living with CF. She provides guidance on navigating insurance coverage, finding financial assistance, accessing resources for food, housing, and utilities, and advocating for patients in school or work settings.

Dr. Christon is a licensed clinical psychologist specializing in health psychology and behavioral medicine. She works with pediatric and adult CF patients and their families as part of the Emotional Health and Wellness Program, conducting mental health screenings and providing interventions, support, resources, and referrals.

Kim is a Certified Genetic Counselor who works with pediatric and adult CF teams. She assists with new patient diagnosis, newborn screening, and genetic testing, ensuring patients are matched to treatments or research studies based on their mutations. She educates about CF inheritance, facilitates family and partner testing, and supports family planning, including fertility and family-building options. She also participates in the Emotional Health and Wellness Program by conducting annual depression and anxiety screenings.

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