Resources for Movement Disorders Patients

Movement Disorders

To learn more about support groups and helpful state and national organizations, check out:

PD Net: Caregiver Assistance Program

Our program is based on the premise of empowering community members close to the people with Parkinson’s Disease (PD) to be trained as volunteer caregivers or an as-needed helper, depending on defined needs by the people with Parkinson’s. Some of the services caregivers could provide include companionship, time, reading to patient, taking a walk, assistance with light housekeeping, shopping, transportation, or meal prep.

A Two-Hour Caregiver Class

Class is offered once per month with focus on the following, but specific to the needs of patient and abilities of volunteer caregiver:

  • Motor and non-motor symptoms
  • Psychological stressors
  • Treatment
  • Safety and fall prevention
  • Swallowing precautions
  • Importance of medication compliance
  • Coping
  • Exercise
  • Relaxation

Process for getting started:

  • PD Net coordinator conducts telephone interview with PD patient and family to identify caregiving needs and expectations.
  • Volunteers for each PD patient will be identified (ex. Family, friends, church members, neighbors)
  • Volunteer skill sets will be matched with PD patient and caregiver needs.
  • Volunteers will be trained specific to volunteer’s identified role.
  • Coordinator will schedule a group meeting with PD patient, primary caregiver, recruited volunteer caregivers to create initial bonding, team building, and to begin scheduling their time.

For More Information

Email MUSC Health Parkinson’s Foundation Center of Excellence Nurse Coordinator Nicole Cool, BSN, RN, at cool@musc.edu.

Parkinson’s Disease Orientation for Newly Diagnosed Patients & Caregivers

“Newly diagnosed” as one year or less of a new PD diagnosis. Learn:

  • Introduction to Parkinson’s Disease and current treatment options
  • Introduction to MUSC Health Parkinson’s Foundation Center of Excellence Team
  • Community resources locally and globally
  • Tips and recommendations from Occupational Therapy on Parkinson’s Disease and work life
  • Role of Physical Therapy in early Parkinson’s Disease and overall importance of exercise
  • Overview of research in Parkinson’s Disease, how to stay informed and get involved

MUSC Health Movement Disorders Team

  • Movement Disorders Physicians
  • Parkinson’s Foundation Center of Excellence
  • Nurse Coordinator
  • Neuropsychologist
  • Physical Therapy/Occupational Therapy

Location & Time

  • Clinical Science Building Room 419
  • 96 Jonathan Lucas Street Charleston, SC 29425
  • 2 to 4 p.m.

Dates Offered

  • July 19, 2019
  • October 18, 2019
  • February 21, 2020
  • June 19, 2020
  • October 16, 2020

RSVP for date of choice to cool@musc.edu.